As evidenced by the title of this blog, yes, it's true - we are going home. :) There is both good and bad to this reality. The wonderful thing is that we get to be in the comfort of our own home and provide Lucia the best possible care we can there. Also a great thing is that Lulu has shown some improvement in the past 24 hours - you can tell just by the way she has been interacting with us. She is much more alert and aware of her surroundings...and she's doing one of my favourite things -- crying when I put her down after carrying her for a while. Is that cruel? :) I just LOVE that she wants me to carry her (I mean, I don't always love it -- I do have things to do sometimes -- but I LOVE it - she KNOWS ME!). The flip side of this is that she is still sick. Her left lung is still collapsed. Because of the hole in her heart, congestion and fluid-up on her lungs will always be an issue. Since we have chosen a less invasive way to treat her medically, there is very little to be done, except your prayers -- and they are working by the way.
As I previously said, it is a miracle that she is still alive -- and I really realized how big of a miracle today. Doctors have been preparing us for the worst since Monday, and it is because her oxygen levels have been so low. They fall into the 40s and 50s frequently (remember that normal is 90-100). She always seems to wiggle her way out of these low oxygen spells, but more often than not, she is living on a very low oxygen supply - and probably has been doing so since birth, where she was turning blue on a frequent basis. This is probably medically inexplicable. Through God's grace, your prayers and her strength, she is living and bringing joy and lessons to many people.
Before we get ready to head out, I want to ask for another prayer. Another T18 baby is in the hospital. Her name is Trishtan and she is 7 months old and is experiencing alarmingly similar issues to Lucia. Please pray for the health of this beautiful and precious little girl.