Just wanted to keep you all posted on Lucia's condition because I have a feeling that last blog sent hearts sinking...but also hearts praying....and as the title says, we have truly felt and experienced the power of your prayers, and we are so incredibly grateful.
Her cry is back, thank God, and honestly, Lucia seems to be acting like her real self again. She is still swiping away at her feeding tube and that cannula, and in fact, today during a diaper change when I was not paying attention (of course), she pulled the feeding tube right out again. What can I say - the girl's got talent! To top this, you would think this would have made her happy, but maybe she knew she had done wrong...so she cried her eyes out! It was SO CUTE!
Though her sweet cry is back, she has been very whiny most of the time and I can't seem to figure out if it is pain, discomfort, gas...the basic checklist. I hope it's not pain. Despite this, she does have moments of total quiet where her eyes just stare back and forth up high in amazement and it's never at any one particular object. Maybe it's presumptuous of me, but I feel convinced she is seeing angels. Finally, the nurse listened to her today and says that she sounds less congested, thank God. She continues to cough very coarsely though, and the fluid in her lungs is very much present...and yet here she is...still fighting. Thank you all again so much for the prayers -- please keep them up.