I wish I could tell you that today was a good day -- obviously when I set up a sentence like that, you know that it wasn't. Lucia got very hysterical this morning and could not be comforted. When the nurse came this afternoon, she determined that Lucia was under respiratory distress and said that Lulu was using everything that she had just to breathe. Breaks my heart. It is the worst thing in the world to watch your child suffer - and I think that the Lord would agree...so would His Mother. The medication we gave to ease her distress seemed to have little effect, but now, many hours later, Lucia is peacefully sleeping right by her daddy...and still trying to swipe at her cannula and feeding tube...yep, that's right....IN HER SLEEP! :) Her eyes are totally closed and her heart rate has slowed down (so I *think* she's sleeping, unless this little girl is playing me for a fool!) and yet, her hands are busy waving at her face to reach her desired goal - which is to rip all that stuff off her face. She is so determined and strong-willed.
Please continue to pray that the Lord have mercy on her.
Some pics from her 5 month birthday...
After bath time.
In her birthday outfit - SO glad I was able to capture that BEAUTIFUL smile.
The grub. :)